Monday, April 30, 2012
Avery's Bucket List
While this is not a political issue, it is still an issue very close to my heart as a pro life advocate and general lover of all things baby related. Avery Canahuati was born on 11/11/11 and by Good Friday of this year was diagnosed with the rare genetic disorder Spinal Muscular Atrophy (SMA). She was given 18 months to live. Now she cannot move legs or hold up her head and soon she will require a machine to breathe. This disorder is the number one genetic killer of infants but most people have never even heard of it despite over 7.5 million Americans carrying the gene. Rather than allow their daughter die in vain, the Canahuati's have created a blog documenting Avery's checking off items on her "bucket list" to do before she dies. Their hope is that through this blog they will be able to let more Americans know about this disorder and encourage potential parents to get tested and know their odds so that they will not have to go through this too.